this would be something i really believe in..no one should not have access to life saving medications because of the cost. please access the link in the email and sign the petition.

hello, Carol-

i hope you're doing okay- i've been watching the blog regularly.

i wouldn't normally email to ask this. it didn't feel right to ask you in the blog, or through messages. i'm doing it because i think i could use your help, and it won't take any time at all.

i'm on a drug called Kalydeco, which has helped to significantly reduce my CF symptoms. however, now that the Blue Cross plan has changed, i won't have access to it anymore until Pharmacare (and BC) decides to cover it.

the cost is astronomical- the cost of a mortgage, per year. (300,000$ CAD or thereabouts).

the BC government is dawdling in deciding whether to cover it or not, even though it's been approved by Health Canada for over 20 months. they're presently saying they won't even consider looking until it until the end of the year. (after saying they would look into it 5 months or so ago).

mum has been following the progress of the drug for over 7 years. i was able to access a 3 month supply of it before Blue Cross' plan changed, and my health has changed dramatically as a result.

the cost, of course, is what's frightening. what scares me is what's going to happen to my health when i stop taking it.

the CF foundation has launched this petition, focused on Alberta's premier, to try to encourage them to approved it in Alberta. (they're the main province who are actually interested in looking to fund it. Quebec said no, due to the cost).

http://www.change.org/en-CA/petitions/alberta-premier-redford-and-health-minister-horne-provide-cystic-fibrosis-patients-with-the-drug-kalydeco#share

i would really appreciate it if you signed this, and passed it around to as many people as possible.
if Alberta approves it, BC likely won't be far behind.

i would really appreciate it.